After our surprise hospital stay at 32 weeks pregnant, we
have known that Miles does not look very good on Non Stress Tests (NST’s). I
have asked many times if there is something else wrong with him and the answers
have varied, but mostly the answer is we
don’t know. Since then, I am required to get a Biophysical Profile ultrasound
twice a week. This ultrasound looks for fine and large motor skills, amniotic
fluid levels and he has to practice breathing for 30 seconds in a 30 minute
period. At every test, he waits until the 29th minute to start
breathing. Every time I ask God to show us he is healthy and to make him breath
if he is actually ok. Every time he has passed all the tests, until today.
At today’s ultrasound, Miles wouldn’t move at all. He wouldn’t
breath. The tech was almost violently shaking my abdomen, but still nothing. I
wish I could say this surprised me, but nothing does anymore. The doctor
decided to follow with an NST which was pretty unnecessary to me since I
already knew what would happen. He didn’t do anything during the NST either.
Normally, all of the results would send me back to the hospital but there is an
overall sense of what’s the point? I need
to have these tests redone tomorrow and I have a feeling if they are the same,
I will be in the hospital again.
When the medical staff talks about my son, they have a sad, solemn
look on their faces and don’t look me in the eye. They use words like “Unresponsive,”
“Non Reactive” and “Under Performing.” They say things like “Wake up baby!”
None of these results are new or unexpected but today they just affected me
differently. The tears flowed easier today and fear gripped my muscles. All my
nervous habits have come to the surface. These words are describing a real
person. This is a real life. This is my son’s life. I want to believe that he
will be ok. Some days I truly believe it and some days I’m just convincing
myself.
So many people have graciously and selflessly helped us
through this time. There has been emotional and financial support that we have
desperately needed. Eventually my parents couldn’t bear that fact that every
dime we have and that is given to us, just goes to doctor bills and all fun
things have gone out the window.
For a long time I have daydreamed of having a patch of grass
in our yard for our kids. My parents paid for us to get this patch of grass but
it hasn’t been installed yet. I spend a lot of time staring at our dirt yard, fantasizing
about this little piece of life growing in it. I picture getting to watch my
boys play in this grass, watching them grow and hosting friends in our yard. I
used to imagine a life of jet setting and excitement but now I just daydream of
a little piece of grass in my yard. It seems like such a luxury now. Something
so simple will mean so much.
Most people won’t understand what this grass will mean to
me. It has almost been a little token of hope through this all. When I picture
Miles at his healthiest, he is laughing and giggling in the grass and playing
with Weston. I have tried to pass the time of anxiety of serving others in
whatever way I am capable as I have accepted so much service lately. But in my
quiet moments, I stare at this yard and imagine what is to come.
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